Hello, I’m 40 yrs old male in search of some desperate help with condition that has lasted over five years. I’ve had over four different Skype consultations with TCM practitioners who took me into different directions to no avail and some made things much worse. If any of you could look into this and provide your thoughts I would be forever grateful!
My symptoms are too numerous to list here and they seem to be all over the board: heating turning to cold, cold turning into heat, change with season, change with weather, changer with climate and so on.
Tongue has pale/grey coating all over, acupuncturist also says my tongue is wider with slight teeth marks (photo link here). I was told my pulse is shallow.
It all slowly started with becoming sensitive to dairy and wheat – would feel very lethargic or tired for hours after eating these. I experienced h pylori infection, appendix inflammation and surgery, etc. Then I started feeling constant lower back pain and periods where I felt wired and needed little sleep to keep going. Once I moved back to Eastern Europe from California it all blew up for me.
My sleep was become very light and very shallow. I developed an aversion to cold foods, liquids, raw food but not because I couldn’t digest it but because it caused bad insomnia. A raw salad later in the evening can keep me up all night for some reason, sometimes with some strange cold pulses from my abdomen down into my legs. Even if I eat right I still had insomnia and it manifested in a variety of ways over the years. I usually fell asleep OK but then I was up three hours later every single night. If I eat anything later than 6pm I wake up around midnight hot. If I eat right, I still wake up around 2:00am feeling very warm, restless, sometimes hungry. I drink water and often fall asleep but wake up very early again, usually being warm again. I have to urinate multiple times at night. Most of the time I wake up tired, unrefreshed and experience heart palpitations and shortness of breath during the day.
Strangely, if I eat anything with wheat and dairy, cream, etc (cake for example) I can be burning half of the night (10am-1am) and nothing would help. There’s something about that food that causes extreme response.
I also can not eat anything too warming like ginger, cinnamon, lamb, etc. This would make me very hot at night and make it impossible to sleep. I also have to avoid high histamine and glutamate foods as those are very stimulating during the night and can keep me up. I once took some L-Glutamine supplements and couldn’t sleep for quite a few days afterwards from a buzz in my head.
One of the most persistent and annoying sensations is this heat in my abdomen about 30-45 following meals. I get the same heat even after drinking cool water. An apple for example can make me very hot. It is worse when I’m reclining.
Stress tolerance is extremely poor, fatigue is really bad and I have to project my voice with force in order to speak and I get easily exhausted.
Kidney Yin and Yang tonics don’t do anything for me because the biggest issue is my gut now. Any yin or cold, bitter herbs even bitter food will make me chilled and fatigued.
I feel better from liver heat and heart heat clearing herbs but then develop these chills during the triple burner time 9-11:00pm, and also feel cold during the 9-11:00am. Also, two or three days later my fatigue gets so much worse with heavy legs that I can hardly drag around.
Any qi building herbs like astragalus and codonopsis initially give me a boost but then I get irregular heart beat, shortness of breath, feeling hot during the day and especially at night.
I tried playing around combining herbs for various patterns but can’s seem to find a good balance, mainly because I am not customizing them and play around with traditional herbal formulas like rehmannia six, rehmannia eight, gui pi tang, bu zhong yi qi tang, etc.
One of the better formulas I’ve used was Jia Wei Xiao Yao. It really got things moving inside of me again. No constipation, returned my appetite, etc but I had to stop about 1.5 months into it as I was feeling these really bad chills during the triple burner time 9-11:30pm, couldn’t sleep at all and nothing helped.
The best formula so far for me has been the Poria Five Combo and some gelatin to nourish yin/protect fluids (closest I could get to Zhu Ling Tang (Polyporus Decoction)). The latter combination helps me retain fluids better at night, not to be so thirsty all the time and prevents frequent urination.
I found out I feel pretty good Xiang Sha Liu Jun Zi Pian but it gives me sleeplessness.
I’ve consulted with a few TCM practitioners but they recommended things that did not work out for me. They either addressed kidney yin deficiency and methylation protocol (Dr. Wilson stuff), some addressed liver only, some claimed it is both yin deficiency and qi deficiency. I’m very sensitive to any supplements and most cause a paradoxical reaction. Tried formulas like ‘bu zhong yi qi tang,’ ‘jin kui shen qi and ‘tian wang bu xin pian’ but these do not work (together or separately) and create more imbalances for me.
In short, these are various deficiencies but I’m having a hard time untangling them and I am not addressing to root deficiency or perhaps there is a gate that I’m not entering through. For example, there’s probably something going on with the spleen that is not allowing me to nourish kidney jing or vice versa.
What is your take on all of this? I would be so grateful for any input.